Taking Time for Elsa Joncee finished his treatments at the end of August right after school began. This came as a relief for us and it’s hopefully the beginning of a more normalized life for this less than normal life we’ve been living.
At the end of September we did a blood draw to see what his counts were showing just a few weeks out. One of our oncologists noticed that Joncee’s red blood cells have been growing. (not numerically, but in size) Initially this was going to put me into a frenzy, but they have been growing since he’s been on chemo.
As Jayme asked about it, our oncologist told us we cannot know anything until chemo is out of his body. This usually takes about 3 months. That date is November 20th. We have not been fretting about it and this is not a “sound all alarms” type post by any means, but just where we are today. Joncee has been doing great outside of his energy levels can drop quicker, but he continues to thrive in soccer, go to school, pick on his sister, and track all sports stats and games pertaining to MLB, NFL, and the NBA.
I’m writing this post today because we are 24 days away. I’m asking that if you will set your alarms or notifications on your phones, tablets, etc. to 11:20am everyday and remind yourself to pray for Joncee by name wherever you are in the world, prayers will be constant for him leading up to November the 20th. This is going to be a big day for us and for especially for him.
On a different note, I, like most of you have become overwhelmed by the fact the word “Frozen” no longer pertains to what many of you will be experiencing in the coming months. It refers to Disney and the billions they’ve made off birthday parties this year since the movie came out. My household has been no different.
I have begun to listen more closely to the requests of my children to just play with them. I hear so many stats about screen addictions these days and I think we as parents must confess we do not model with efficiency what it means to be present with our kids.
I’m so sick of Elsa that my revulsion for her has led to a pseudo rejection of my daughter’s desire to share space with me as her dad.
With that said, it’s time to make time for Elsa. It may mean I need to be Anna and frolic around in the playroom with a wand or help my daughter put her 95,000 stuffed animals to bed. It may mean the World Series game doesn’t get completely watched because my son actually wants to play catch instead of watching guys do it on TV.
I feel like it’s time for us as adults to rise up and recognize while we think our kids have a lot of growing up to do, so do we. Just like so many learn everyday, our life rhythms can change in a moment. Our kids need us. They need you.
Let’s make time for Elsa.
You are loved.